I’m Megan. Recent Duke grad, aspiring blogger, and typical 22 year old trying to find her way in the world. However, there is a catch. Having been born with a rare connective tissue disorder called Epidermolysis Bullosa. I have also, for as long as I can remember, been asked “what’s the matter with you?” It would seem that the morbid curiosity of strangers leaves little room for scruples. So, seeing has how I have been asked time and time again, here is my answer.
Nothing, really. My answer is nothing. I have a condition. I also am a person with hopes, dreams and aspirations just like any other. There are many matters, however, that my condition has caused me to have to grapple with on a daily basis. This blog will tackle such matters, with more of a framework of disability with a dash of overarching social commentary through the lens of someone who lives not just with a disability, but a complex rare disorder, and how that’s shaped how I see the world. This is the matter with Megan.